EXPERIENCES OF HIV DIAGNOSIS AND DISCLOSURE
However, people living with HIV who took part in the Positive Perspectives survey felt that there were a number of ways in which the feeling of stigmatisation could be decreased – 64% (694/1,085) felt better education for the general public will help reduce stigma and 26% (283/1,085) feel that better training of non-HIV specialists, including physicians, nurses and other healthcare professionals, would reduce stigma in the broader healthcare setting.1
As a member of the Positive Perspectives survey Steering Committee, it is important to me that we continue to monitor the attitudes and perceptions of people living with HIV to understand the evolving challenges they face, with a view to addressing their quality of life needs more effectively. I am particularly interested in how we can better understand patients’ desires to minimise the impact their treatment has on their everyday lives. It is important for the HIV community to work together to help people living with HIV understand the options they have and show them that the latest research allows them to safely live long and satisfying lives.
While this is just the beginning for Positive Perspectives, I am looking forward to the next release of data. It will focus on the how people living with HIV feel about their treatment programmes and talking to their doctors.
For Positive Perspectives data highlights, view this infographic.
The Positive Perspectives survey:
The Positive Perspectives survey is an international survey of people living with HIV and their partners, carried out to better understand their emerging needs and challenges, and to learn how HIV continues to affect their lives. The survey was conducted by ViiV Healthcare, in collaboration with an international, multi-disciplinary Steering Committee of experts, which includes HIV physicians, people living with HIV and patient group representatives. The first set of data, focusing on the attitudes and perspectives of people living with HIV at diagnosis and disclosure, was presented on 24 July 2017 at the 9th International AIDS Society meeting in Paris. The data highlighted key global trends about the emotional support that people living with HIV did and did not receive at diagnosis and the impact of stigma on their lives.
- Murungi A, et al. Experience of living with HIV: Diagnosis & Disclosure – findings from the Positive Perspectives study. Presented at the IAS Conference on HIV Science (IAS 2017), 2326 July 2017, Paris, France. Available at: https://www.natap.org/2017/IAS/IAS_69.htm. Last accessed January 2021.