At ViiV Healthcare, our ambition is to make HIV a smaller part of people’s lives. The Positive Perspectives research (Waves 1 and 2) forms part of our ongoing commitment to people living with HIV, enabling us to better understand the evolving needs and challenges faced by a diverse group of participants across the world. 

The Positive Perspectives work remains true to our belief in the importance of ensuring meaningful involvement of people living with HIV, aligned with the Denver Principles. The Advisory Committee for this research involved members of the global HIV community including people living with HIV, advocates and healthcare providers.

‌WHY IS THE POSITIVE PERSPECTIVES RESEARCH IMPORTANT?

Few international HIV studies capture the experiences of people living with HIV (PLHIV) beyond viral suppression. Positive Perspectives is an opportunity to hear how people living with HIV across the world think, feel, and live. Results from the Positive Perspectives research encourage people living with HIV and their healthcare providers to look beyond viral suppression and focus on health-related quality of life.

Positive Perspectives Wave 1 survey

The first wave of the Positive Perspectives research involved 1,111 people living with HIV from nine countries - Australia, Austria, Canada, France, Germany, Italy, Spain, UK and the US. An additional survey was conducted with 250 partners of people living with HIV. The key domains covered in Wave 1 were:

  • Diagnosis
  • Sharing status
  • Stigma
  • Managing treatment
  • Communication between people living with HIV and their healthcare providers

Positive Perspectives Wave 2 study

Positive Perspectives Wave 2 is one of the largest, global, HIV patient-reported outcomes (PRO) studies to date. The second wave of research used a more robust methodology and statistical analysis plan, allowing statistically significant comparisons across different groups.

Wave 2 involved 2,389 people living with HIV from 25 countries – Argentina, Australia, Austria, Belgium, Brazil, Canada, Chile, China, France, Germany, Italy, Japan, Mexico, Poland, Portugal, Republic of Ireland, Russia, South Africa, South Korea, Spain, Switzerland, Taiwan, The Netherlands, UK and the US. The key domains covered in Wave 2 were:

  • Taking multiple treatments (polypharmacy)
  • The importance of open dialogue between people living with HIV and their and healthcare providers
  • Ageing well with HIV
  • Women & HIV 
  • Undetectable = Untransmittable and the impact this knowledge can have on health outcomes

Positive Perspectives results from Wave 1 and Wave 2 are available across a number of articles on Our Stories / Positive Perspectives research section here. Please read further to learn about the study findings, as well as a Policy Manifesto developed by the study Advisory Committee and join the Positive Perspectives conversation on our social media channels.

READ POSITIVE PERSPECTIVES WAVE 1 ARTICLES:

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Read the introduction to the Positive Perspectives survey (Wave 1) from Dr Bruno Spire, member of the Positive Perspectives Steering Committee, launched at the IAS conference in 2017. 

Read about preliminary data from the Positive Perspectives survey (Wave 1) launched at the IAS conference in 2017. 

Read about Positive Perspectives survey (Wave 1) with data specifically looking at the experience of people living with HIV in Europe and their views on HIV treatment. Data were presented at the 16th European AIDS Clinical Society (EACS) meeting in 2017

READ POSITIVE PERSPECTIVES WAVE 2 ARTICLES:

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Hear from Garry Brough, who draws on insights from the Positive Perspectives 2 study, on the complex relationship of ageing with HIV, the importance of optimising ones treatment options and the value of focusing on the needs of the individual.

Find out more about how taking multiple medications can affect quality of life for people living with HIV. Data from Positive Perspectives study (Wave 2).

Few international HIV studies capture the experiences of people living with HIV, including health-related quality of life, beyond viral suppression. The latest Positive Perspectives (Wave 2) is one of the largest, global, HIV patient-reported outcomes (PROs) studies to date and provides perspectives from a diverse group of people living with HIV across the world.

NP-GBL-HVX-COCO-220033 November 2021.