Global Positive Perspectives Study, Wave 2: Understanding the Unmet Needs of People Living with HIV

 What is the Positive Perspectives Wave 2 Study?

The Global Positive Perspectives Wave 2 Study is one of the largest, global, HIV patient-reported outcomes studies to date, involving 2,389 people living with HIV (PLHIV) aged 18-84 across 25 countries. Building on insights gained from the initial Positive Perspectives Wave 1 survey, results from Positive Perspectives 2 reveal the experiences of PLHIV, reflecting changes in HIV care and providing insights into aspects of quality of life that need to be addressed across several key areas including:

  • Concerns about taking multiple medications
  • PLHIV-healthcare provider (HCP) engagement
  • Undetectable = Untransmittable (U=U)
  • HIV and Women
  • Ageing well with HIV

In alignment with the Denver Principles and to ensure involvement of PLHIV, an advisory committee made up of community leaders, HCPs and PLHIV helped guide the research. Listen to members of the Positive Perspectives advisory committee talk about the key findings below…

PLHIV-HCP engagement

Who was involved in the Positive Perspectives study?

Click the image below to read the full Positive Perspectives 2 Results Report

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Brent Allan (Positive Perspectives Wave 2 Advisor, Senior Advisor Policy and Programs, International Council of AIDS Service Organisations, Co-founder of the Positive Leadership Development Institute Australia/New Zealand) discusses findings from Positive Perspectives 2 and talks about how we can ensure there is effective communication between PLHIV and HCPs.

Ageing well with HIV

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Erika Castellanos (Positive Perspectives Wave 2 Advisor, Director of Programs GATE, Member Communities, Rights and Gender Advisory Group; Member of the Board of the Global Fund; Member ViiV Positive Action Strategic Advisory Council) discusses the importance of ongoing open discussions to help address the changing needs of PLHIV as they grow older.

Undetectable = Untransmittable (U=U)

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Bruce Richman (Positive Perspectives Wave 2 Advisor, Founding Executive Director Prevention Access Campaign, Founder of U=U) discusses the opportunity that exists for PLHIV and their HCPs to discuss U=U and help improve health outcomes.

More resources for people living with HIV are available at LiVLife.com.

References:

2. Okoli C, Brough G, Allan B, Castellanos E, Young B, Eremin A, Corbelli GM, Mc Britton M, Muchenje M, Van de Velde N, de los Rios. Putting the heart back into HAART: greater HCP-patient engagement is associated with better health outcomes among persons living with HIV (PLHIV) on treatment; Poster PED 0808 Presented at the 23rd International AIDS Conference, July 6 – 10, 2020.

3. Okoli C, Richman B, Allan B, Brough G, Castellanos E, Young B, Eremi A, Corbelli GM, McBritton M, Hardy D, M Muchenje, Van de Velde N, de los Rios P. A tale of two ‘U’s and their use by healthcare providers: a cross country analysis of information sharing about undetectable = untransmittable (U=U); Poster PED 0773 Presented at the 23rd International AIDS Conference, July 6 – 10, 2020.

7. Short D, Spinelli F, Okoli C, de los Rios P. Clinical and sociodemographic characteristics associated with poor self-rated health across multiple domains among older adults living with HIV; Oral OAD 0903 Presented at the 23rd International AIDS Conference, July 6 – 10, 2020.

8. Short D, Spinelli F, Okoli C, de los Rios P. Understanding the changing treatment concerns of older people living with HIV and difficulties with patient-provider communication; Poster PED 0787 Presented at the 23rd International AIDS Conference, July 6 – 10, 2020.

Click the image below to read the full Positive Perspectives 2 Infographic