The Positive Perspectives Wave 2 study is the second in a series of studies aimed at revealing the experiences of people with HIV and providing insights into HRQoL and challenges in HIV care.3
Positive Perspectives Wave 2 is one of the largest, global, HIV patient-reported outcomes studies to date: 2,389 people with HIV aged 18–84 across 25 countries participated in the Positive Perspectives Wave 2 study.3
HRQoL is an increasingly important aspect of holistic care for people with HIV.8,9 Patient-reported outcome measures (PROMs) provide a patient-centred approach to quantifying responses to care.9 The PozQoL scale is a validated tool for people with HIV, developed in Australia for day-to-day use in health and community services.22,23
Tools like PozQoL help to empower people with HIV to engage in open and active dialogue with their HCP.9
- Wandeler G et al. Curr Opin HIV AIDS. 2016; 11(5): 492–500.
- Althoff KN et al. Curr Opin HIV AIDS. 2016; 11(5): 527–36.
- ViiV Healthcare. Positive Perspectives Study, Wave 2 Results Report. June 2021. Available at: https://viivhealthcare.com/content/dam/cf-viiv/viiv-healthcare/en_GB/files/030821-updated-pp2-report-approved.pdf Accessed October 2021 Accessed November 2021.
- Okoli C et al. AIDS Behav. 2021; 25(5): 1384–95 (including supplement).
- Allan B et al. Popul Med. 2021; 31: 1–14.
- Okoli C et al. Prev Chronic Dis. 2020; 17: E22.
- de Los Rios P et al. AIDS Behav. 2021; 25(3): 961–72.
- Lazarus JV et al. BMC Med. 2016; 14(1): 94.
- Lazarus JV et al. Nat Commun. 2021; 12(1): 4450.
- Okoli C et al. Putting the heart back into HARRT: Greater HCP-patient engagement is associated with better health outcomes among persons living with HIV (PLHIV) on treatment. Presented at IAC 2020, July 6–10; Virtual.
- Flickinger TE et al. J Acquir Immune Defic Syndr. 2013; 63(3): 362–6.
- Dawson-Rose C et al. J Assoc Nurses AIDS Care. 2016 27(5), 574–584.
- McMahon JH et al. Med J Aust. 2021; 215(5): 201–2.
- ASHM. U=U: ASHM Guidance for Healthcare Professionals. October 2020. Available at: https://www.ashm.org.au/resources/uu-ashm-guidance-for-healthcare-professionals/ Accessed November 2021.
- Okoli C et al. Sex Transm Infect. 2021; 97(1): 18–26.
- The Antiretroviral Therapy Cohort Collaboration. Lancet HIV. 2017; 4(8): e349–56.
- de Los Rios P et al. Popul Med. 2020; 2: 23.
- Okoli C et al. Treatment experiences, perceptions towards sexual intimacy and child-bearing, and empowered decision making in care among women living with HIV. Presented at the 10th International Workshop on HIV & Women, Boston, MA, March 6-7, 2020.
- Short D et al. Clinical and sociodemographic characteristics associated with poor self-rated health across multiple domains among older adults living with HIV. Presented at the 23rd International AIDS Conference, July 6–8 2020; Virtual.
- Short D et al. Understanding the changing treatment concerns of older people living with HIV and difficulties with patient-provider communication. Presented at the 23rd International AIDS Conference, July 6-10, 2020.
- Okoli C et al. “What about me?” The unmet needs of men who have sex with women and differences in HIV treatment, experiences, perceptions, and behaviours by gender and sexual orientation in 25 countries. Poster P016 Presented at HIV Drug Therapy Glasgow 2020, October 5-8 2020, Virtual.
- Brown G et al. BMC Public Health. 2018; 18(1): 527.
- PozQoL. About PozQoL. Available at https://www.pozqol.org/about-pozqol/ Accessed November 2021.
The Positive Perspectives Wave 2 study was sponsored by ViiV Healthcare.
This study could not have been completed without people living with HIV who have generously shared their time, experiences, and bodies, for the purposes of this research. Much of the fight against HIV and AIDS relies upon people living with HIV continuing to put themselves forward and this research and our fight against HIV and AIDS is indebted to those past and present.